About CDDH
The centre was founded December 2021 to become a long-needed multidisciplinary arena for research and development in the field of health data. Our mission is to empower citizens, health care providers, researchers, and society at large by making health data from all sources generally available and useable while respecting legal requirements and individual integrity.
To reach the mission, a shift is needed towards individual oriented handling of health data. A new infrastructure will be required to make this shift possible. By establishing CDDH and inviting stakeholders to take part in the centre with their knowledge and needs, the centre’s ambition is to make a substantial contribution towards the creation of such an infrastructure in society.
In the centre, concrete system development will be combined with research and critical analysis along the way to reach a truly sustainable solution. For this, an academic environment is required, with competences in technical development, semantics, ontology, domain knowledge (medicine, health), law, organizational theory, political science, and economics. In addition, representation from healthcare, medical research, societal institutions, and industry is required. CDDH has been created to be such an environment.
Infrastructure
CDDH is currently working on one infrastructure candidate for individual oriented storage based on a general reference ontology in a secure, distributed architecture of interconnected nodes. This platform meets all requirements in the frameworks of Vinter and Digg (the Swedish Agency for Digital Government). It is built bottom up as one coherent solution, potentially solving several of today’s unsolved problems in health data. Generic design makes the platform useful outside of the health domain, for any kind of data.
Founding partners
KTH School CBH in collaboration with EECS and ABE
Region Stockholm: Center for Health Data (CHD)
Karolinska Institutet: Department of Global Public Health
Karolinska Hospital: Post-covid clinic, Huddinge
Läkemedelsindustriföreningen (LIF)
Digitaliseringkompaniet AB (Origo programme)
Steering Committee
Chairman:
Mikael Lindström (Deputy President, KTH)
Committee members:
Clara Hellner (Stockholm Region)
Karolina Antonov (LIF, The research-based pharmaceutical industry)
Anette Wagler (Digitaliseringskompaniet)
Maria Eriksdotter (Karolinska institute)
Annika Tibell (Karolinska university hospital)
Center director (as participants in the meetings):
Sebastiaan Meijer (vice head of school KTH CBH), Director
Fredrik Öberg (Karolinska university hospital), Vice Director
Core Team
Adam Darwich – KTH (associate professor)
Allan Gustafsson – Digikomp (PhD)
Anette Wagler – Digikomp
Fredrik Öberg – Digikomp (MD)
Gösta Enberg – Digikomp (PhD, MD)
Harsha Krishna – KTH (PhD student)
Jayanth Raghothama – KTH (associate professor)
Jens Eliasson – Digikomp
Luca Marzano – KTH (PhD student)
Reine Bergström – KTH
Robin Jeffner – Digikomp
Sebastiaan Meijer – KTH (professor)